YOPN’s Living Well Starts Here

Call on the Fighter 2

"Calling all music lovers! Tune in to the young onset Parkinson's podcast interview episode of 'Call on the Fighter' Part 2 where we sit down with the one and only Richard Gootee. He'll be sharing his incredible story, the inspiration behind his Grammy-winning song "Just Reach Out" for the 80s Christian Rock band Petra. Plus, we'll be getting the inside scoop on "Call on the Fighter" and his new release, The Caregiver (I Need A Love)". And who knows, we might even hear an endorsement from Peter Frampton. And don't forget to welcome our new co-hosts Nathan Lee Ward and Ned Neuhaus! #CallontheFighter #RichardGootee #JustReachOut #Petra #YoungOnsetParkinsons #TheCaregiverINeedALove #PeterFrampton #NathanLeeWard #NedNeuhaus #Music #Radioparkies #YOPN #Podcast #inspiration

Joni and Sequoia Lowe talk about their song ”Sim Shaky”

When a mom with young onset Parkinson's and her son team up, amazing things happen! Checkout the heartwarming story of Joni and Sequoia Lowe and their hit song "Slim Shaky"

ESPN Founder Bill Rasmussen and his new book ”One Giant Leap for Fankind”

"Exciting news for sports fans! "One Giant Leap for Fankind," the new book by ESPN founder Bill Rasmussen, has just won the grand prize at the New England book festival. In the book, Bill shares his secrets to staying positive and offers valuable tips for maintaining a positive outlook. Don't miss this opportunity to hear from the man who revolutionized sports broadcasting and get your hands on a copy of this award-winning book. Follow Bill Rasmussen for more inspiring content“
to purchase the book go to https://www.espnfounder.com/books
Special thanks to APDA Regional Director Bill Patjane

Michelle Newman C.O.O of the Kirk Gibson Foundation for Parkinson’s

Michelle Newman, the Chief Operating Officer of the Kirk Gibson Foundation for Parkinson's, discusses her decision to leave corporate America and join the foundation. She shares her personal connection to Parkinson's disease through her father's experience with the condition, and discusses how he managed his disease. Additionally, she explains the mission and purpose of the Kirk Gibson Foundation for Parkinson's, which is dedicated to supporting individuals with Parkinson's and advancing research on the condition.

SEGMENT THREE: DEVELOPING A WELLNESS PLAN TO MANAGE YOUR DIAGNOSIS

Thanks to Ellen Bookman for taking the lead on this series
Special thanks to StanandTeresa Jackson for coming on the show (Part 3) and sourcing great guests for this series.
 
Teresa Jackson is a National Board-Certified Health & Wellness Coach (NBC-HWC), Duke Integrative Medicine Coaching Program, and a Certified Coach— International Coaching Federation who will:
Discuss how to take what you have learned about mental wellness, develop a plan, and apply it to your everyday life in concert with the medical management aspect of the disease.
Karen Goble, Director at Southern Regional Area Health Education, an ordained chaplain, and a certified Integrative Health Coach and Cognitively Based Compassion Training teacher through the Emory University Center for Contemplative Science and Compassion-Based Ethics will:
Discuss the benefits of utilizing calming techniques such as meditation and breathing as a tool to maintaining Mental Wellness.
Mental Health Series
Segment 2
https://yopn.podbean.com/e/mental-health-part-2-with-ellen-bookman-and-dr-charles-dent/
Segment 1
https://yopn.podbean.com/e/maintaining-emotional-health-is-as-important-as-the-medical-management-of-any-chronic-disease-diagnosis/

Dr. Peter Schmidt talks about Parkinson’s and Covid

Dr. Schmidt is active in research, specializing in the intersection between mathematics and medicine, with a special interest in mapping the n-dimensional spaces of clinical data. Schmidt serves as an advisor to several government, industry, and foundation initiatives. He has been involved in several national-scale quality initiatives including with the US National Quality Forum and the Fresco Network in Italy. Schmidt has recent or current advisory engagements in wearable sensors, telemedicine, remote monitoring, and clinical trial design. He has contributed to AHRQ and Commonwealth Fund publications and has been an invited speaker for NIH and diverse international patient and professional conferences. Schmidt previously worked in corporate finance-focused on healthcare innovation, created chronic disease management systems, and served as Chief Operating Officer of a joint venture of Oxford, Stanford, and Yale delivering online education. Educated at Harvard and Cornell, he had a fellowship

PMD Alliance and the ALL IN summit

In this Episode we spoke with Andrea Merriam, CEO and Anissa Mitchell, LCSW, Chief Program Officer of the PMD Alliance about the ALL IN summit
The ALL IN summit was held October 22-25 in Washington DCThis national in-person summit gathered community + support group leaders and allies from around the country, convening prospective leaders, newbies, and veterans to connect, collaborate, and embrace the magic that happens when we come together to learn.
About the PMD alliance
PMD Alliance is a 501c3 nonprofit organization dedicated to educating, empowering, and connecting people with movement disorders, their families, and the healthcare providers and community members who care for them.

PART 2: Mental Health: Navigating through Life with Ellen Bookman and Dr. Charles Dent

Welcome to Segment 2 of our mental health series
Segment 1 included
MENTAL HEALTH SYMPTOMS ASSOCIATED WITH A YOPD DIAGNOSIS which can be found here
https://twomikespdpodcast.podbean.com/e/maintaining-emotional-health-is-as-important-as-the-medical-management-of-any-chronic-disease-diagnosis/
In segment 2 we discuss a PRIMER ON WAYS TO STAY MENTALLY HEALTHY AS YOU NAVIGATE THOSE THINGS IN LIFE THAT where we:
Discuss how we process and understand feelings and emotions as we deal with situations unique to those diagnosed with YOPD
Offer insight into managing and expressing feelings
Dive into how we connect with others
Describe how we function or “put the pieces together” to make life decisions such as family, marriage, work, retirement, etc.
Our guest is Dr. Charles Dent:
Dr. Charles Dent, M.Div, PHD., is a licensed Mental Health First Aid Trainer, Coach and Therapist. Dr. Dent, a Veteran of the US Marine Corps
Special thanks to Ellen Bookman and Theresa Jackson

Call on the Fighter

Call on the Fighter" began as a simple idea...create and offer original music to encourage and inspire "fighters" along their Parkinson's journey. Colleen Bridges, owner, and director of Bridges for Parkinson's found the perfect fit in one of her own fighters, Rich Gootee. Rich, an award-winning singer/songwriter, knows all too well the constant and daily struggles as he was diagnosed with Parkinson's disease in 2018. Colleen's experience, research, and regular boxing classes have helped Rich and many others discover the fight within themselves to overcome the otherwise debilitating effects of Parkinson's disease. Together, Colleen, Rich, and their team have grown the music idea into an effort to help even more fighters find restoration and hope by raising funds so that nobody will ever have to be turned away from their local program. Please check out more information about our project and consider purchasing our song at www.callonthefighter.com.
Thank you for watching!  https://www.youtube.com/watch?v=rq6onvFOC9Y
Song Written and performed by Greg Anderson and Rich Gootee

The woman who can smell Parkinson’s

The woman who can smell Parkinson’s
Joy Milne’s husband Les was diagnosed with Parkinson’s at the age of 45. However, it had been 12 years earlier when Joy had first noticed that something was different about him.
Joy has a rare condition called hereditary hypersomnia that gives her a heightened sense of smell. When Les was 33, she noticed that he had started to develop an odor, which she described as a subtle, musky smell.
She also noticed the same distinct smell when attending meetings organized by the charity Parkinson’s UK. It was at this point that she was able to link the smell to the disease.
 Joy’s ‘super smeller’ abilities would soon go on to make headlines around the world, and along with researchers, they're changing the landscape of diagnosing Parkinson's.