YOPN’s Living Well Starts Here

Darbe Schlosser explains how to break through bradykinesia

Darbe Schlosser is the coach, consultant, & creator of the Motorvation System. Motorvation (https://www.motorvationfoundation.org/) provides scholarships for People with Parkinson's to receive fall prevention consulting and coaching. They have administered over 900 hours of training through the Parkinson's Foundation community grant. They are in the process of developing a rehabilitative training taxonomy to improve the deliverance of rehabilitative training to the Parkinson's demographic. In addition to developing the best strategies to overcome movement abnormalities within a highly variable disease, Darbe also focuses on improving the deliverance of these methods with consideration of movement history, movement goals, and individual constraints that impact learning and performance outcomes. ‍ She believes there exists an interrelatedness between motor output and sounds. Understanding these relationships can better provide you with tools on how to break through mental and motor blocks and successfully deconstruct and reconstruct complex movement patterns.

Keri Shaw tells her story about how sobriety helped her manage Parkinson’s

About Keri: Dedicated single mama to 2 amazing girls. Keri has had a long career in pharmaceuticals and geeks out reading anything she can that has to do with research and science. Keri is an avid athlete, starting early as a competitive gymnast and later fell in love with all things running. After being diagnosed with young onset Parkinson’s, Keri knew from her prior experience with recovery and sobriety that in order for her to continue to show up for life that she would need to find her people and build a village. The positive approach she takes on living with YOPD allows Keri to keep pushing forward despite living with Parkinson's

SEASON 1 - EPISODE 14 Kevin Kwok tells his story including working with Big Pharma

The Young Onset Parkinson's Network Podcast (YOPnetwork.org) is proud to present a conversation with Kevin Kwok! Kevin tells his story and discusses being an ambassador of Davis Phinney, his talks with DP and gives his insight of the pharma/biotech industry where he spent years building a great career. About Kevin "9 years ago, at the age of 48, I was diagnosed with Young Onset Parkinson’s Disease. After recovering from the shock of this diagnosis, I opted to embrace my disease. Having been trained as a clinician (PharmD- U of Michigan 1986) and a 30 year executive in the biopharma industry, I approach my disease with a unique involvement and curiosity at multiple levels. To quote Michael J Fox, “when you’ve seen a Parkinson’s patient, you’ve only seen one patient.” The issue is that no two PD patients are exactly alike, and this poses a dilemma in treating our tribe according to traditional clinical paradigms. This is where personalized medicine (PM) comes in. In the course of my presentation, I will share how my involvement in PM as a patient will both help me and others with this disease."

SEASON 1: EPISODE 15 Jan Grimes and Parkinson’s hacks

For this weeks show sponsored by the Young Onset Parkinson's Network (Yopnetwork.org) on Radio Parkies Webradio at radioparkies.com, listen to the story about inventor Jan Grimes. Jan talks about living with PD and a few Parkinson’s hacks. Check out this Davis Phinney video for more Parky hacks https://davisphinneyfoundation.org/tips-tricks-and-products-to-manage-parkinsons-symptoms/

Introducing PD Advocate and popular YouTuber Jeremy McDonald

The Young Onset Parkinson’s Network (YOPN) and radioparkies.com are proud to present the story of a rising personality in the Parkinson’s community, Jeremy McDonald.   Jeremy a talented musician initially started a YouTube channel to showcase his music then he was diagnosed with PD.   So Jeremy decided to change the focus to spreading awareness and help others with this condition using his wit, and sense of humor all the while being serious when needed.   Check out his videos by searching JEREMY MCDONALD ON YOUTUBE

SEASON 1: EPISODE 13: Advice from a young onset Parkinson’s advocate and his care partner with Vivek and Chai Puri

Are you aware there’s an excellent podcast that deals specifically with Care Partner support for women who have a  partner with young onset Parkinson’s? It’s called Married2PD (https://www.married2pd.com/) Check out the above link to learn more Vivek and Chai talk about raising children, communication, agonists, social media and much more About Vivek and Chai Married for 15 years. Living in Northern Virginia with three kids Chai grew up near Boston and is a trained doctor and a licensed massage therapist. She works in Vivek's home building business. She also started and runs Married2PD, an organization focused on providing a place of support for wives of people with YOPD. There is a website, Facebook group, podcast, and a monthly gathering via zoom. She really enjoys gardening and reshuffling furniture and furnishings inside the home over and over again. Vivek grew up in Northern Virginia. For the last 16 years he has worked with his father in the family homebuilding business, which sounds like a euphemism for a mafia money laundering operation. Now that his wife also works in the company, he shudders at the thought of giving her a performance evaluation. He was diagnosed with Parkinson's disease 10 years ago, the day after his third child was born. New show’s sponsored by the Young Onset Parkinson's Network every Thursday evening at 6:00 EST on radioparkies.com.’

SEASON 1 EPISODE 12: Interview of Jennifer Sullivan founder of you tube channel ”The Wiggles Project” https://www.thewigglesproject.com/

Have you ever had dyskinesia in a public setting? Then had security walk up to you? Were you alone? Thursday's guest is Jennifer Sullivan and she went through this at a casino in California. Tune in Thursday (5/26/22) to radioparkies.com at 6:00 EST and listen to Jennifer’s story and how she turned a negative situation into a positive outcome called the “Wiggles Project” and spread awareness about dyskinesia and Parkinson's   https://www.thewigglesproject.com/

SEASON 1 EPISODE 11: 5 Facebook friends travel to Oaxaca Mexico to help out their PD community

Five Facebook friends all with Parkinson’s, walk into a bar. Whoops! This really happened! They actually have never met each other in person and decide to travel to Oaxaca Mexico to help the Oaxaca Parkinson’s community. Here’s a few hints of what they discover/re-discover.   Friendship Family Community    Guest hosts: Michael Quaglia, Mike Achin, Heather Kennedy Guests: Gavin Mogan, Nathan Lee Ward, Laura Olmos, Eric Slominski, Russ Parker   Tune in Thursday's at 6:00 EST on radioparkies.com to hear LIVE shows

SEASON 1 : EPISODE 10 - JOE GREGORY Diagnosed with Parkinson’s 3 years ago, kicks (Keepy uppys) a soccer ball for 61 miles

keep·y-up·py noun INFORMAL•BRITISH a game whose aim is to keep a soccer ball in the air for as long as possible by bouncing it off any part of the body except the hands and arm. Thursday (5/12/22) evening on radioparkies.com at 6:00 EST the Young Onset Parkinson's Network (https://yopnetwork.org/) is proud to present the incredible Joe Gregory! Gavin Mogan and I speak with Joe who was diagnosed with Parkinson's in 2019 did "Keepy Uppy's" for 61 miles in addition to completing over 13,000 consecutive right in his back yard. Joe was a great interview who will keep you inspired, don’t miss this one! Check out this video to see a keepy uppy! https://www.youtube.com/watch?v=Q7TzBKLL_XY

SEASON 1: EPISODE 9B: Ninja warrior Bryan Hill talks about having Parkinson’s and appearing on the American Ninja Warrior show

Thursday night at 6 EST on radioparkies.com we spoke with new ninja warrior Bryan Hill, Bryan tells his incredible story beginning with his mother being diagnosed with PD at 23 to becoming a Ninja warrior.