YOPN’s Living Well Starts Here

SEASON 1 EPISODE 7: Parkinson’s power couple Karl and Angela Robb

Tonight at 6:00 EST on radioparkies.com we have two very special people to the Parkinson’s community, Karl and Angela Robb!
They share their amazing journey from meeting in an America on-line chatroom through how they stay strong dealing with PD for over 30 years.
This is a fun, inspiring interview, check it out, you’ll enjoy.
About Karl
Karl Robb has had Young Onset Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-five, he is a Parkinson’s disease advocate, entrepreneur, inventor, Reiki Master, and author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and carepartner, Angela Robb. He has blogged for thirteen years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network.
About Angela
Angela Robb is Karl’s wife of 25 years, co-editor at ASoftVoice.com, Community Team Member at ParkinsonsDisease.net, and a Reiki Master. Angela has advocated for caregiver issues by sharing her experiences at various regional and national Parkinson’s conferences, writing for the Every Victory Counts manual from the Davis Phinney Foundation, and presenting at the World Parkinson Congress. In 2015, Angela was honored at The White House as a Champion of Change in Parkinson’s Disease.

SEASON 1 EPISODE 6: How Tai Chi helped combat debilitating symptoms of Multiple Sclerosis

PODCAST version of Thursday 4/8/22 EST aired LIVE each Thursday on radioparkies.com we talked with Arlene Faulk.
Arlene Faulk is a teacher, writer, storyteller and accomplished business woman. After a years-long struggle to understand and conceal debilitating symptoms as she ascended the corporate ladder, a life-changing zigzag led her to find comfort and healing through Chinese medicine and Tai Chi. She discovered her calling with Tai Chi and has been teaching for more than 20 years.
An award-winning blogger who had a passion for writing from a young age, now Arlene has captured her dramatic personal story in a memoir, Walking on Pins and Needles: A Memoir of Chronic Resilience in the Face of Multiple Sclerosis. Her inspiring story demonstrates how a chronic and debilitating health condition lacks the power to control our lives and stop us from moving in the direction of possibility.
YOU CAN PURCHASE THE BOOK AT https://arlenefaulk.com/book/
PANEL INCLUDES
Ellen Bookman https://laughingmywaythroughparkinsons.home.blog/.../ell.../
Heather Kennedy
https://www.kathleenkiddo.com/blog/
Teresa Jackson
https://podcasts.apple.com/.../parkinsons.../id1541914877

SEASON 1 EPISODE 5

Thursday night 3.25.22 on the YOPN PODCAST we have guests hosts:
Jonathan Braddock author of YOPD Club 1 and 2
Teresa Jackson host of Podcast “Parkinson’s Pathway Pals”
Heather Kennedy podcast host, writer blogger
Mike Achin, athlete, and fundraiser (over 300K for MJFF and APDA) and my co-host for over 5 years
Check it out as we take turns asking blogger and exercise advocate Eric Slominski (PARKYPERSPECTIVE.COM) questions about how he deals with Parkinson’s symptoms and situations.
Also, we have YOPN founder Anna Grill giving updates on the membership drive and the latest happenings with the Young Onset Parkinson’s network.

SEASON 1 : EPISODE 4

Tonight at 6 on Radioparkies.com the Young Onset Parkinson’s Network Podcast (https://yopn.podbean.com/) is proud to present 2-time Stanley cup champion and all-around great guy Shawn Thornton. In this episode Shawn breaks down as he talks about his grandmothers battle with Parkinson’s, his book “Fighting my way to the top”, his foundation (https://www.thorntonfoundation.org/ ) which raises money for Parkinson’s and Pediatric cancer and why he’s worked with the APDA of Massachusetts for 10 years plus much more. Please see attached tribute to Shawn when he played in Boston for 7 years accompanied by the Drop Kick Murphy’s.
Happy St. Patrick’s Day!
https://www.youtube.com/watch?v=APMuw8drN8c
Special thanks to Bill Patjane Executive Director of the APDA Northeast for setting everything up.

SEASON 1 : EPISODE 3

Re-Post from Thursday 3/10/22 on radioparkies.com at 6:00 EST the Young Onset Parkinson’s Network Podcast proudly to spoke with PD advocate extraordinaire Teresa Jackson!
 
Diagnosed in February 2019 Teresa quickly became a tremendous advocate for PD starting with a Mrs. Virginia beauty Pageant where she placed top 10 at 57 years young with Parkinson’s.
 
Next, she authored her book called “Thriving with Parkinson’s – finding Joy after diagnosis” a personal memoir since being diagnosed
 
She didn’t stop there adding a hit Podcast “Parkinson’s Pathway Pals - Tuesdays with Teresa to her resume
 
Today in addition to managing her Podcast, this amazing person is preparing for a bike ride across Virginia (300+ Miles) raising awareness and funds for Parkinson’s research
 
To top it all off she manages to exercise 14-16 hours a week!
Catch the LIVE show Thursday's 6:00 on radioparkies.com
PODCAST: https://www.buzzsprout.com/1386772
FUNDRAISER: https://www.facebook.com/donate/1664174550641619/

SEASON 1: EPISODE 2

RE-POST from Thursday 3/3/22 show on radioparkies.com at 6:00 pm est
 
Heather Kennedy, new co host Ellen Bookman and I, Interview author Michael Murray about his new book “My Pain-Body Solution” A Journey to the Other Side of Suffering which can be purchased on the website mypainbodysolution.com
About the book
MICHAEL J. MURRAY’S powerful memoir chronicles his difficult battle to conquer his undiagnosed pain. Murray confides his emotional torment and near collapse as numerous doctors promise relief but only deliver ineffective treatments, contradicting diagnoses, and often dispassionate care. In the end, Murray’s chance discovery in a book on back pain leads to a dawning awareness of the emotional root of his near-constant agony. As he digs deeper into this line of medicine and therapy—and his past—he uncovers the deep connection between mind and body, the healing power of outdoor pursuits and connecting with nature, and the inspiring, innovative methods that can cure physical and emotional pain.
But first up we have Gavin Mogan, Russ Parker, Laura Olmos, Eric Slominski and Nathan Lee Ward talk about why they’re going to Oaxaca, Mexico this April starting on the 19th. They’re looking to learn about their PD culture and see where they can help

SEASON 1 : EPISODE 1

RePost from LIVE show, Thursday February 24, 2022 6:00 on radioparkies.com for our first podcast as YOPN "living well starts here" podcast.
Tonight we speak with Young Onset Parkinson's Network (YOPN) founder Anna Brown Grill about the latest and greatest updates concerning the YOPN.
Also, we speak with board members and fellow Parkinson's fighters Jeremy Likeness and Mark Kohus, they tell their PD story and address why they joined the YOPN board.
About today's guests:
Anna Grill is the Founder of Young Onset Parkinson’s Network (YOPN). She was on the fast track as a sales executive at a Fortune 200 company, and the youngest and only woman on the executive team when she was diagnosed with Young Onset Parkinson’s Disease (YOPD) in 2007 at the age of 38.
Jeremy Likness has been a professional technology and software developer for over three decades. Currently, Jeremy is the Senior Program Manager for .NET Data at Microsoft where his personal mission is to empower developers to be their best. Prior to his current position, Jeremy helped kickstart the technology and software development efforts for several startups that ultimately grew into multi-million and multi-billion-dollar corporations.
YOPN board member, Mark C. Kohus, is a Senior Vice President and Group Manager with Fidelity Investments. With more than 24 years of experience working in the financial services field, Mark has held a variety of leadership roles including project management, relationship management and supporting operations.