YOPN’s Living Well Starts Here

SEASON 1: EPISODE 15 Jan Grimes and Parkinson’s hacks

For this weeks show sponsored by the Young Onset Parkinson's Network (Yopnetwork.org) on Radio Parkies Webradio at radioparkies.com, listen to the story about inventor Jan Grimes. Jan talks about living with PD and a few Parkinson’s hacks.
Check out this Davis Phinney video for more Parky hacks
https://davisphinneyfoundation.org/tips-tricks-and-products-to-manage-parkinsons-symptoms/

Introducing PD Advocate and popular YouTuber Jeremy McDonald

The Young Onset Parkinson’s Network (YOPN) and radioparkies.com are proud to present the story of a rising personality in the Parkinson’s community, Jeremy McDonald.
 
Jeremy a talented musician initially started a YouTube channel to showcase his music then he was diagnosed with PD.
 
So Jeremy decided to change the focus to spreading awareness and help others with this condition using his wit, and sense of humor all the while being serious when needed.
 
Check out his videos by searching JEREMY MCDONALD ON YOUTUBE

SEASON 1: EPISODE 13: Advice from a young onset Parkinson’s advocate and his care partner with Vivek and Chai Puri

Are you aware there’s an excellent podcast that deals specifically with Care Partner support for women who have a  partner with young onset Parkinson’s?
It’s called Married2PD (https://www.married2pd.com/)
Check out the above link to learn more
Vivek and Chai talk about raising children, communication, agonists, social media and much more
About Vivek and Chai
Married for 15 years.
Living in Northern Virginia with three kids Chai grew up near Boston and is a trained doctor and a licensed massage therapist. She works in Vivek's home building business. She also started and runs Married2PD, an organization focused on providing a place of support for wives of people with YOPD. There is a website, Facebook group, podcast, and a monthly gathering via zoom. She really enjoys gardening and reshuffling furniture and furnishings inside the home over and over again.
Vivek grew up in Northern Virginia. For the last 16 years he has worked with his father in the family homebuilding business, which sounds like a euphemism for a mafia money laundering operation. Now that his wife also works in the company, he shudders at the thought of giving her a performance evaluation. He was diagnosed with Parkinson's disease 10 years ago, the day after his third child was born.
New show’s sponsored by the Young Onset Parkinson's Network every Thursday evening at 6:00 EST on radioparkies.com.’

SEASON 1 EPISODE 12: Interview of Jennifer Sullivan founder of you tube channel ”The Wiggles Project” https://www.thewigglesproject.com/

Have you ever had dyskinesia in a public setting?
Then had security walk up to you?
Were you alone?
Thursday's guest is Jennifer Sullivan and she went through this at a casino in California.
Tune in Thursday (5/26/22) to radioparkies.com at 6:00 EST and listen to Jennifer’s story and how she turned a negative situation into a positive outcome called the “Wiggles Project” and spread awareness about dyskinesia and Parkinson's
 
https://www.thewigglesproject.com/

SEASON 1 EPISODE 11: 5 Facebook friends travel to Oaxaca Mexico to help out their PD community

Five Facebook friends all with Parkinson’s, walk into a bar. Whoops! This really happened! They actually have never met each other in person and decide to travel to Oaxaca Mexico to help the Oaxaca Parkinson’s community. Here’s a few hints of what they discover/re-discover.
 
Friendship
Family
Community 
 
Guest hosts: Michael Quaglia, Mike Achin, Heather Kennedy
Guests: Gavin Mogan, Nathan Lee Ward, Laura Olmos, Eric Slominski, Russ Parker
 
Tune in Thursday's at 6:00 EST on radioparkies.com to hear LIVE shows

JOE GREGORY Diagnosed with Parkinson’s 3 years ago, kicks (Keepy uppys) a soccer ball for 61 miles

keep·y-up·py
noun INFORMAL•BRITISH
a game whose aim is to keep a soccer ball in the air for as long as possible by bouncing it off any part of the body except the hands and arm.
The Young Onset Parkinson's Network (https://yopnetwork.org/) is proud to present the incredible Joe Gregory!
Gavin Mogan and I speak with Joe who was diagnosed with Parkinson's in 2019 did "Keepy Uppy's" for 61 miles in addition to completing over 13,000 consecutive right in his back yard.
Joe was a great interview who will keep you inspired, don’t miss this one!
Check out this video to see a keepy uppy!
https://www.youtube.com/watch?v=Q7TzBKLL_XY

SEASON 1: EPISODE 9B: Ninja warrior Bryan Hill talks about having Parkinson’s and appearing on the American Ninja Warrior show

Thursday night at 6 EST on radioparkies.com we spoke with new ninja warrior Bryan Hill, Bryan tells his incredible story beginning with his mother being diagnosed with PD at 23 to becoming a Ninja warrior.

SEASON 1: EPISODE 9A: TikTok-er Chris Sutphin talks about mental health and Parkinson’s

Thursday night 5/5/22 at 6:00 on radioparkies.com we spoke Christopher Sutphin otherwise known as cosmosperfect on TikTok. Chris talks about mental Health and Parkinson’s and https://www.parkie.tv/

SEASON 1 EPISODE 7: Parkinson’s power couple Karl and Angela Robb

Tonight at 6:00 EST on radioparkies.com we have two very special people to the Parkinson’s community, Karl and Angela Robb!
They share their amazing journey from meeting in an America on-line chatroom through how they stay strong dealing with PD for over 30 years.
This is a fun, inspiring interview, check it out, you’ll enjoy.
About Karl
Karl Robb has had Young Onset Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-five, he is a Parkinson’s disease advocate, entrepreneur, inventor, Reiki Master, and author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and carepartner, Angela Robb. He has blogged for thirteen years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network.
About Angela
Angela Robb is Karl’s wife of 25 years, co-editor at ASoftVoice.com, Community Team Member at ParkinsonsDisease.net, and a Reiki Master. Angela has advocated for caregiver issues by sharing her experiences at various regional and national Parkinson’s conferences, writing for the Every Victory Counts manual from the Davis Phinney Foundation, and presenting at the World Parkinson Congress. In 2015, Angela was honored at The White House as a Champion of Change in Parkinson’s Disease.

SEASON 1 EPISODE 6: How Tai Chi helped combat debilitating symptoms of Multiple Sclerosis

PODCAST version of Thursday 4/8/22 EST aired LIVE each Thursday on radioparkies.com we talked with Arlene Faulk.
Arlene Faulk is a teacher, writer, storyteller and accomplished business woman. After a years-long struggle to understand and conceal debilitating symptoms as she ascended the corporate ladder, a life-changing zigzag led her to find comfort and healing through Chinese medicine and Tai Chi. She discovered her calling with Tai Chi and has been teaching for more than 20 years.
An award-winning blogger who had a passion for writing from a young age, now Arlene has captured her dramatic personal story in a memoir, Walking on Pins and Needles: A Memoir of Chronic Resilience in the Face of Multiple Sclerosis. Her inspiring story demonstrates how a chronic and debilitating health condition lacks the power to control our lives and stop us from moving in the direction of possibility.
YOU CAN PURCHASE THE BOOK AT https://arlenefaulk.com/book/
PANEL INCLUDES
Ellen Bookman https://laughingmywaythroughparkinsons.home.blog/.../ell.../
Heather Kennedy
https://www.kathleenkiddo.com/blog/
Teresa Jackson
https://podcasts.apple.com/.../parkinsons.../id1541914877