YOPN’s Living Well Starts Here

Parkinson’s Advocate on a Mission: Jon Pawelkop’s Journey to Rock Steady Boxing”

Jon Pawelkop, an Ambassador for the World Parkinson’s Congress 2023, was recently featured on the YOPN podcast. He promotes Rock Steady Boxing (RSB) and encourages others to "Make It Mean Something" (MIMS). In May 2018, Jon started a personal challenge called "Boxing Grand Tour Fighting Parkinson’s," which involved visiting an RSB affiliate class in every state and working out with the fighters there while also sharing words of encouragement. He completed this goal within 13 months and visited more than 60 RSB affiliates. Jon also attended the World Parkinson’s Congress in Kyoto, Japan, where he helped represent RSB and assisted coaches from various countries as they demonstrated their lessons to attendees.

Empowering Parkinson’s Caregivers: Insights from a Trauma-Informed Healthcare Professional

The YOPN Podcast (https://yopnetwork.org/) proudly presents Terri Pease Ph.D.
Dr. Pease released a book entitled Love, Dignity and Parkinson's: from Care Partner to Caregiver (https://www.amazon.com/Love-Dignity-Parkinsons-Partner-Caregiver/dp/B0BK311HKF)
If your spouse or loved one has been diagnosed with Parkinson's Disease, you may be feeling overwhelmed and unsure of how to best care for them without losing yourself. Seabury House Press's new book, Love, Dignity and Parkinson's: from Care Partner to Caregiver, offers a new approach to caregiving that can help ease the stress and anxiety that come with this diagnosis.

Shining a Light Through Parkinson’s: The Inspiring Story of Miguel Sanchez in the Entertainment Industry

Welcome to this week's episode of YOPN podcast! Today, we have the privilege of sharing the inspiring story of Miguel Sanchez, a skilled professional who worked as a lead on lighting sets for a plethora of movies and television shows, including popular hits like "Brothers and Sisters" and "Parks and Recreation." However, Miguel's life took an unexpected turn when he was diagnosed with Parkinson's disease. In this episode, we will delve into Miguel's journey as he battles Parkinson's, his experiences in the entertainment industry, and how he is persevering despite the challenges he faces. So sit back, relax, and join us as we listen to Miguel's story.

Driving Parkinson’s Education: Meet the Content Creator Making a Difference!

Get ready for an inspiring episode of the Young Onset Parkinson's Network podcast! Today, we're thrilled to introduce you to Mel Dizon, a content creator and Parkinson's disease advocate who's changing lives through education. From driving the Davis Phinney Foundation's mission to help people live well today, to organizing workshops and webinars, Mel is a force to be reckoned with. But she's not just about work - when she's not writing or editing, you can find her crushing it at CrossFit, sipping on scalding-hot decaf chai, and hanging out with her furry friends. So buckle up, and join us as we chat with Mel about her passion for Parkinson's advocacy and her drive to make a difference!
#Parkinsons#PDawareness#Parkinsonsdisease#ShakeItOff#ParkinsonsTreatment#BeatPD#ParkinsonsResearch#PDArmy#ParkinsonsAwarenessMonth #NeverGiveUp

From Principal to Parkinson’s Advocate: A.C. Woolnough’s Inspiring Journey

This weeks "Living Well Starts Here" podcast features A.C. Woolnough, a retired school principal diagnosed with Parkinson's Disease in 2015. A.C. has become an active writer, speaker, and advocate within the Parkinson's community, participating in research projects and presenting at conferences and support groups. He has authored two books titled "ON FIRE" and "STILL ON FIRE: Reflections on a Journey Through Life with Parkinson’s Disease" and made appearances on radio and television. The episode is an inspiring listen for those interested in Parkinson's Disease, advocacy, and personal journeys.

Cracking the Code of Neurodegeneration: A Conversation with Dr. Jennifer Johnston

Dr. Jennifer Johnston has spent 20 years studying neurodegenerative disease, including the discovery of aggresomes and their link to neurodegeneration. She is now the Co-Founder/CEO of NysnoBio, a biotech company focused on modulating the parkin enzyme pathway for unmet medical needs in neurology and oncology. Learn more about her groundbreaking work in neurodegeneration research! #neuroscience #research #innovation #biotech #NysnoBio

Disability Insurance Nightmare: One Man’s Struggle with the system

Please note the information on this episode is in process of being fact checked.
Welcome to the YOPN podcast! In today's episode, we'll be discussing Tim Brandt's frustrating experience with long-term disability insurance. Many of us rely on insurance to protect us in the event of unforeseen circumstances, but what happens when the system fails us? Our guest today will be sharing his personal story of navigating the complexities of disability insurance and the challenges he faced along the way. 
The Young Onset Parkinson’s Network (YOPN) invites you to join them on Tuesday, March 14th to learn from disability expert T.J. Geist. Get the inside scoop on Social Security Disability and gain valuable insights on how to navigate the system. To sign up for the event, visit yopnetwork.org and click on events. 

Shaking Up Awareness: High School Students Take On Parkinson’s Disease

A group of high school students are spreading awareness about Parkinson's Disease for their HOSA project, which is a worldwide club for future health professionals. Their idea came from one of the group member's uncle who has suffered from the disease for the last 16 years. The students have been working on various activities to raise awareness, such as selling donuts and making bracelets, and will be presenting their project at the spring leadership conference on March 10th. The students have also created a website to further spread awareness and encourage others to share their stories and suggestions.
Website: https://learn-fundraise-and-tell-your-parkinsons-disease-story.square.site/about-us
Special thanks to Sadie Robitaille, Brady Benedict-Smith, Sydney Pagnozzi and Ava Pilderian

From Trauma to Triumph: Melissa’s Inspiring Story on YOPN Podcast

Hey everyone! 📢🎉 The YOPN Podcast is thrilled to introduce our next guest, Melissa Marie Livingston - you may know her as missmliv on Instagram and undeniablyhoneybee on TikTok!
At just 13, Melissa lost her mother and had to overcome so much as the "Red headed step child". Her incredible story includes beating a tough marriage, being diagnosed with YOPD, and even hitting one million views on her #parkinsonslookslikeme hashtag! 😲 We can't wait for you to hear her inspiring story!
We want to let you know that this episode includes some deep discussions about suicide and trauma, so please take care while listening. Remember, if you or anyone you know needs help, reach out to the Crisis Text Line by texting HOME to 741741, the National Suicide Prevention Lifeline at 1-800-273-8255, the Trans Lifeline at 1-877-565-8860, or the TrevorLifeline at 1-866-488-7386 (for LGBTQ youth). Let's support one another! ❤️ #YOPNPodcast #MelissaMarieLivingston #MissMLiv #UndeniablyHoneybee #ParkinsonsLooksLikeMe #InspiringStory #MentalHealthAwareness

NoSilverBullett4PD: Michel Planquart and Mark Limebear become fast friends and start an international support group

Welcome to this week's episode of the "YOPN Podcast" where we explore the incredible power of human connection and the extraordinary things that can happen when people come together.
 
Today, we bring you the inspiring story of Michel Planquart and Mark Limbear. These two men met through a shared experience of living with Parkinson's disease, and their friendship sparked an idea that would change the lives of people all over the world.
 
Together, they founded the NoSilverBullett4PD support group, a community dedicated to helping those with Parkinson's disease navigate the challenges of their condition with support and understanding.
 
Join us today as we dive into the incredible story of Michel and Mark and learn how their friendship and dedication to helping others has made a profound impact on the lives of countless people. It's a story of hope, resilience, and the remarkable power of human connection.