YOPN’s Living Well Starts Here
Join us as we chat with members of the YOPD community Disease, care partners and experts in the YOPD field to learn more about this neurodegenerative disease and those living with it.
Join us as we chat with members of the YOPD community Disease, care partners and experts in the YOPD field to learn more about this neurodegenerative disease and those living with it.
Episodes

Monday May 15, 2023
Monday May 15, 2023
Today's YOPN podcast episode features Antonia Kotsiros, who has worked in the music industry and operated businesses in the coffee and holiday accommodation industries. Antonia's life took a dramatic turn when she was diagnosed with Parkinson's disease, leading to the end of her relationship, selling of her businesses, and a significant decline in her health. Antonia's focus on healing her body and discovering Dr. Joe Dispenza's healing work has resulted in health improvements. Her mission is to serve others on a similar path and become an inspirational speaker. In her free time, Antonia enjoys various activities such as songwriting, yoga, and travelling. The podcast will explore Antonia's journey of resilience, hope, and finding joy amid adversity

Monday May 08, 2023
Monday May 08, 2023
The YOPN Podcast features Albert Latullippe, who shares his inspiring journey of how a chance encounter with Greg Geheb at his gym, with an expired groupon, led him to start the first Rock Steady Boxing Program in New England. Al went on to build the program from the ground up, expanding to multiple locations, and is now celebrating a 10-year milestone. Tune in to the YOPN Podcast to hear Al's story of overcoming obstacles and achieving success, and get ready to be inspired and uplifted

Tuesday May 02, 2023
Parkinson’s Advocate on a Mission: Jon Pawelkop’s Journey to Rock Steady Boxing”
Tuesday May 02, 2023
Tuesday May 02, 2023
Jon Pawelkop, an Ambassador for the World Parkinson’s Congress 2023, was recently featured on the YOPN podcast. He promotes Rock Steady Boxing (RSB) and encourages others to "Make It Mean Something" (MIMS). In May 2018, Jon started a personal challenge called "Boxing Grand Tour Fighting Parkinson’s," which involved visiting an RSB affiliate class in every state and working out with the fighters there while also sharing words of encouragement. He completed this goal within 13 months and visited more than 60 RSB affiliates. Jon also attended the World Parkinson’s Congress in Kyoto, Japan, where he helped represent RSB and assisted coaches from various countries as they demonstrated their lessons to attendees.

Tuesday Apr 25, 2023
Tuesday Apr 25, 2023
The YOPN Podcast (https://yopnetwork.org/) proudly presents Terri Pease Ph.D.
Dr. Pease released a book entitled Love, Dignity and Parkinson's: from Care Partner to Caregiver (https://www.amazon.com/Love-Dignity-Parkinsons-Partner-Caregiver/dp/B0BK311HKF)
If your spouse or loved one has been diagnosed with Parkinson's Disease, you may be feeling overwhelmed and unsure of how to best care for them without losing yourself. Seabury House Press's new book, Love, Dignity and Parkinson's: from Care Partner to Caregiver, offers a new approach to caregiving that can help ease the stress and anxiety that come with this diagnosis.

Monday Apr 17, 2023
Monday Apr 17, 2023
Welcome to this week's episode of YOPN podcast! Today, we have the privilege of sharing the inspiring story of Miguel Sanchez, a skilled professional who worked as a lead on lighting sets for a plethora of movies and television shows, including popular hits like "Brothers and Sisters" and "Parks and Recreation." However, Miguel's life took an unexpected turn when he was diagnosed with Parkinson's disease. In this episode, we will delve into Miguel's journey as he battles Parkinson's, his experiences in the entertainment industry, and how he is persevering despite the challenges he faces. So sit back, relax, and join us as we listen to Miguel's story.

Monday Apr 10, 2023
Driving Parkinson’s Education: Meet the Content Creator Making a Difference!
Monday Apr 10, 2023
Monday Apr 10, 2023
Get ready for an inspiring episode of the Young Onset Parkinson's Network podcast! Today, we're thrilled to introduce you to Mel Dizon, a content creator and Parkinson's disease advocate who's changing lives through education. From driving the Davis Phinney Foundation's mission to help people live well today, to organizing workshops and webinars, Mel is a force to be reckoned with. But she's not just about work - when she's not writing or editing, you can find her crushing it at CrossFit, sipping on scalding-hot decaf chai, and hanging out with her furry friends. So buckle up, and join us as we chat with Mel about her passion for Parkinson's advocacy and her drive to make a difference!
#Parkinsons#PDawareness#Parkinsonsdisease#ShakeItOff#ParkinsonsTreatment#BeatPD#ParkinsonsResearch#PDArmy#ParkinsonsAwarenessMonth #NeverGiveUp

Tuesday Mar 28, 2023
From Principal to Parkinson’s Advocate: A.C. Woolnough’s Inspiring Journey
Tuesday Mar 28, 2023
Tuesday Mar 28, 2023
This weeks "Living Well Starts Here" podcast features A.C. Woolnough, a retired school principal diagnosed with Parkinson's Disease in 2015. A.C. has become an active writer, speaker, and advocate within the Parkinson's community, participating in research projects and presenting at conferences and support groups. He has authored two books titled "ON FIRE" and "STILL ON FIRE: Reflections on a Journey Through Life with Parkinson’s Disease" and made appearances on radio and television. The episode is an inspiring listen for those interested in Parkinson's Disease, advocacy, and personal journeys.

Wednesday Mar 22, 2023
Cracking the Code of Neurodegeneration: A Conversation with Dr. Jennifer Johnston
Wednesday Mar 22, 2023
Wednesday Mar 22, 2023
Dr. Jennifer Johnston has spent 20 years studying neurodegenerative disease, including the discovery of aggresomes and their link to neurodegeneration. She is now the Co-Founder/CEO of NysnoBio, a biotech company focused on modulating the parkin enzyme pathway for unmet medical needs in neurology and oncology. Learn more about her groundbreaking work in neurodegeneration research! #neuroscience #research #innovation #biotech #NysnoBio

Monday Mar 13, 2023
Disability Insurance Nightmare: One Man’s Struggle with the system
Monday Mar 13, 2023
Monday Mar 13, 2023
Please note the information on this episode is in process of being fact checked.
Welcome to the YOPN podcast! In today's episode, we'll be discussing Tim Brandt's frustrating experience with long-term disability insurance. Many of us rely on insurance to protect us in the event of unforeseen circumstances, but what happens when the system fails us? Our guest today will be sharing his personal story of navigating the complexities of disability insurance and the challenges he faced along the way.
The Young Onset Parkinson’s Network (YOPN) invites you to join them on Tuesday, March 14th to learn from disability expert T.J. Geist. Get the inside scoop on Social Security Disability and gain valuable insights on how to navigate the system. To sign up for the event, visit yopnetwork.org and click on events.

Wednesday Mar 08, 2023
Shaking Up Awareness: High School Students Take On Parkinson’s Disease
Wednesday Mar 08, 2023
Wednesday Mar 08, 2023
A group of high school students are spreading awareness about Parkinson's Disease for their HOSA project, which is a worldwide club for future health professionals. Their idea came from one of the group member's uncle who has suffered from the disease for the last 16 years. The students have been working on various activities to raise awareness, such as selling donuts and making bracelets, and will be presenting their project at the spring leadership conference on March 10th. The students have also created a website to further spread awareness and encourage others to share their stories and suggestions.
Website: https://learn-fundraise-and-tell-your-parkinsons-disease-story.square.site/about-us
Special thanks to Sadie Robitaille, Brady Benedict-Smith, Sydney Pagnozzi and Ava Pilderian

Learn More About YOPN
The Young Onset Parkinson’s Network provides programming, resources, and a vibrant community, transforming the lives of those with YOPD and their loved ones. We partner with experts in the field to increase awareness and empower our members to live well and thrive far beyond this unexpected, early diagnosis. To learn more and join, visit www.yopnetwork.org






